FACTOR VIII

Ok...bear with me. I'm on my phone typing which is never good. Ha.

I keep getting questions.

*all four boys have a factor viii blood deficiency
*my dad has it...its hereditary
*thanks, B. Haha
* Asa and jude have a baseline of 5 which is the worst of the 4
*Titus has a baseline of 8
*Abe has a baseline of 13
*normal people are at 60+
*we've only used factor for surgeries and a handful of times in 8 years by the grace of God
*we let them play sports and will until it isnt safe. So far, again, by Gods grace, we have been ok
*they aren't the norm and we know it. Again, Gods grace and sovereignty.  Several kids we have met in clinic have ports and weekly or daily infusions with asa and judes numbers.
*we let them live normal lives and be boys and so far so great
*yes a slam like abe Took to the head today ensues panic and could end good or bad...thankfully, thus far other than hours at the ER in flu season...we are good
*the medicine we have to keep on hand is 1000s of dollars worth at 2 doses per kid...ers don't always have it in stock so if we travel...it does too
*we've been so thankful that the boys have been able to be boys with minor bumps in the road this far and pray and trust God will continue to allow it
*we have FULL faith and TRuST in our sovereign God and realize our lives thus far could be so different (scroll to any March on this blog)
That answers all my Instagram questions and fb messenger for now. I'm am open book on this. Ask away!!!